Advocacy to me means being vulnerable enough to share my personal health experiences and journeys in an effort to have meaningful and hopefully beneficial impact. While learning and maneuvering through symptoms, appointments, frustrations, tests, medical procedures, emotional falls, successes, etc, I still have an opportunity to help someone else. Who knows, possibly even learn something to help myself. Advocacy is a way to help hold on to some sort of hope for better tomorrow, if not for me, at least for future generations.
Advocating provides me an opportunity to help others by offering support to those that are searching for someone they can relate to and understands what they are going through. It allows me to share knowledge about my illness and spread awareness on social media and publicly. I can participate in advocacy projects and campaigns, volunteer with helping to plan, manage, promote, etc, which sometimes adds a sense of value and purpose to my life.
For me, the majority of my advocacy takes place on my computer from my couch. Timing is flexible. Recently, however, my mind has not been connected with advocacy. Don't get me wrong, I still share things that others create once in a while, participate in surveys, respond to a message/question sent my way, etc.. . Maybe it's because I'm so "burned out" from dealing with my personal issues or having to spend way too much energy trying to deal with my own struggles, that I have nothing left to give right now. Hopefully, the new plan between my doctor and I will help improve these current symptoms.
My concentration, mind fog, lightheaded spells along with "normal" issues have been a big distraction and problem, not only with advocacy, but life in general. I just feel so frustrated and exhausted, physically and mentally, right now. But that's ok, just means I need to spend extra time focusing on my self-care for a while.
A proud mother, educator, Gastroparesis & GI Motility Disorder Advocate,
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